January 13, 2010
Tiffany, Brian and Caylee went to DeVoss Hospital today in Grand Rapids for a meeting with the specialist to discuss Caylee’s progress. The way I understand it is: they are going to try a different medication to lessen the reflux and if that doesn’t work, surgery is the next option.
They are trying to avoid having to do surgery, so please keep Caylee in your
prayers that this medication will do the trick.
I have had my miracle through the power of prayer, so who’s to say the same can’t happen for Caylee?
Posted by Amber Kimberly. Posted In : Caylee
November 18, 2009
Posted by Amber Kimberly. Posted In : Caylee
June 22, 2009
So sorry for lack of posts... I have been bad about not getting things posted here -- sorry! Tuesday, June 16, 2009
12 lbs & 12 oz! 7 oz gain from last week, perfect!
We are growing, we are puking, and we are pooping! Right where a baby is supposed to be...right?
Caylee & I are heading to Toledo to visit with my family for the week... she has changed so much in just the last month.
She is regularly sampling rice cereal & pureed fruits now. It's a slow process... we're really not much furth... Continue reading...
Posted by Amber Kimberly. Posted In : Caylee
May 26, 2009
Mon 5/25/2009 8:59 AM
We're 5 whole months old!
We looked at her in awe last night with the notion that it has been 5 months....
Not much has changed with her feeding habits... sometimes she feels like it, but usually not.... I'm working with her at home on the things started in therapy. We play with teething toys and such... anything for a positive oral experience!
She was apparently fertilized for the spring, because she is growing like a weed! She seriously feels heavier to me every d... Continue reading...
Posted by Amber Kimberly. Posted In : Caylee
May 15, 2009
Wednesday 5/13/2009 1:32 AM
We've got a weight gain!
Well we weighed in at a whopping 10 lbs, 12oz. Her hydration is better, although it remains a constant struggle. I it seems to be late afternoon that i start to notice her diapers are drier and she is lacking of fluid. Her doctor said she can have small amounts of pedialyte every day if she needs it to stay hydrated.
We are starting the intense feeding program on this thursday in Traverse City. The first visit is an evaluation where the... Continue reading...
Posted by Amber Kimberly. Posted In : Caylee
May 13, 2009
Monday, 5/11/2009 12:41 AM
Well, my little princess was kind enough to give me a good morning, happy mother’s day present of 3 this morning: pee, poop, & puke… ahhh the start of a great day! She’s doing about the same…. It’s a constant struggle to keep enough fluid down her. We go back to the dr tomorrow for our weekly check, so I will send out an update from that aspect tomorrow night.
We had our first pass the baby around at a restaurant last night. Denny took everybody ... Continue reading...
Posted by Amber Kimberly. Posted In : Caylee
May 5, 2009
Monday 5/4/2009 6:44 AM
My apologies on the absence of a recent update..... life got very hectic very quickly!
Caylee was discharged from Nationwide in Columbus last monday, 4/27. She and I spent the remainder of the week with my family in Toledo (Which was wonderful), and just returned back to Gaylord this weekend. I have a month's worth of unpaid bills, a dirty house, & some massive planning to do for the little one.
Her G tube feedings have been going ok... I think the reflux part of i... Continue reading...
Posted by Amber Kimberly. Posted In : Caylee
April 28, 2009
Caylee was discharged from the OSU Childrens's Hospital this afternoon. Tiffany and Caylee are in Toledo for a few days, visiting with friends and family, going to have pictures taken by the AMAZING Emily Smith and then I am going to take her home on Friday and stay for the weekend. The internet was down at the hospital and Tiffany was unable to send any emails. She will try to get out an update in the next day or so, and as soon as that happens, I will post here. For now, let's all just ... Continue reading...
Posted by Amber Kimberly. Posted In : Caylee
April 25, 2009
Thurs, 4/23/2009 11:02 PM
She had a dose of Morphine at 9pm... it took about 5 min before she calmed down. She seemed uncomfortable when we got back from dinner. She was not hysterical, but i asked for her to get something before she got there. She's feeling very binkie dependant but that's ok, she can have it. She tends to kick her legs to try to move the princess bubbles out the bottom end, and she was irritating the site as she was doing that. Once she cries she irritates it further. ... Continue reading...
Posted by Amber Kimberly. Posted In : Caylee
April 23, 2009
Thurs, 4/23/2009 12:44 AM1,2,3,4,5,6... Unbelievable! So she had to have an IV put in tonight before the procedure tomorrow at 11 am. First 4 sticks were nurses... all misses. 5th was the attending physician- hit but it blew before they could flush. I was getting very angry as Caylee was absolutely exhausted by this point. They finally called for a nurse practitioner from the acute NICU that does IV's every day. She hit on first try. The nurses were upset that the NP's made them look stu... Continue reading...
Posted by Amber Kimberly. Posted In : Caylee
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