Monday 5/4/2009 6:44 AM

My apologies on the absence of a recent update..... life got very hectic very quickly!
 
Caylee was discharged from Nationwide in Columbus last monday, 4/27.  She and I spent the remainder of the week with my family in Toledo (Which was wonderful), and just returned back to Gaylord this weekend.  I have a month's worth of unpaid bills, a dirty house, & some massive planning to do for the little one. 
 
Her G tube feedings have been going ok... I think the reflux part of it has actually gotten worse since the tube placement, which they said may happen.  They have taken a muscle (the stomach) which naturally moves and contracts in order to empty, and pinned it to the wall of her abdomen.  By losing that ability to move naturally, the vomiting has worsened.  I've been trying to re-feed what she looses, but she's losing a lot! 
 
I've been doing some trial and error with her feeds to try to see what will work best for her.  Thickened feeds seem to help a bit, but she still tosses those cookies.  Continuous feeds overnight will ensure volume getting in to her, but using the pump means the milk cannot be thickened, so she refluxes overnight and tosses her cookies that way..... 
 
I'm up right now becuase she decided that 5 am was a good time to poo... which caused her to reflux, which sent her into a vomiting episode.... Got her cleaned up, calmed down and back to sleep.  Now we try feeding again!
 
We see the doctor today... i think her weight is up, but we'll see.  The biggest challenge here is keeping her hydrated when she vomits everything that goes in. 
 
I will send out again tonight... with her weight & BP... With any luck, both will be great!

Tiffany Turbin :)




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here are a couple of pics that I (Amber) took this past weekend during my visit

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Monday 5/4/2009 10:16 PM

We weighed in at 10 lbs even.... that's a 4 oz gain from one week ago today.  That's about half of what she should be gaining, but it is a gain.  She is slightly dehydrated... enough for concern but not hospitalization.  I have until thursday to attempt to keep more fluids down her & I have to get back with her doctor. 
 
We will of course continue to work on oral feeding, but i feel it's most important to concentrate more on keeping her nourished & hydrated. 
 
She puked real good for daddy tonight.... Good shot Caylee!

Tiffany Turbin :)